PARE0007 PATIENT AND PUBLIC INVOLVEMENT IN CLINICAL TRIAL DESIGN
نویسندگان
چکیده
منابع مشابه
The Value of Patient and Public Involvement in Trial Design and Development.
The Independent Cancer Patients’ Voice (ICPV; www. independentcancerpatientsvoice.org.uk) is a patient advocate group bringing the views and experience of those affected by cancer to the cancer research community. The ICPV believes that clinical research is improved by patients being partners with healthcare professionals, rather than passive recipients of healthcare. Patient and public involve...
متن کاملPatient and public involvement in the early stages of clinical trial development: a systematic cohort investigation
BACKGROUND Randomised controlled trials (RCTs) are considered particularly likely to benefit from patient and public involvement (PPI). Decisions made by professional researchers at the outset may go on to have a significant impact on the potential for PPI contributions. OBJECTIVE To increase knowledge of PPI within the early development of RCTs by systematically describing the reported level...
متن کاملWhose voices? Patient and public involvement in clinical commissioning
AIM This paper aims to explore patient and public representation in a NHS clinical commissioning group and how this is experienced by staff and lay members involved. BACKGROUND Patient and public involvement is believed to foster greater public representativeness in the development and delivery of health care services. However, there is widespread debate about what representation is or what i...
متن کاملPatient and public involvement.
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk). Patients and Public Involvement (PPI) has been ...
متن کاملIs more involvement needed in the clinical trial design & endpoints?
Duchenne muscular dystrophy (DMD) is a recessive X-linked form of muscular dystrophy, affecting around 1 in 3,600 boys, which results in muscle degeneration and eventual death. Long before any promising drug was at the horizon Duchenne parents came forward to organise research meetings where they made it clear they were willing to shoulder responsibility and contribute towards advancing treatme...
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ژورنال
عنوان ژورنال: Annals of the Rheumatic Diseases
سال: 2020
ISSN: 0003-4967,1468-2060
DOI: 10.1136/annrheumdis-2020-eular.145